Tuesday, April 5, 2016

More Than Words Can Say

At the bottom of this post, where I usually share a music video, is a short video of the 'tremor stage' I'm in... it can, and usually will, get much worse before it gets better. My voice is getting softer and huskier so you may need to raise the volume to hear me clearly.You can describe, apologise and try to explain until you're blue in the face, but actually seeing something beats all that, hands down. 

Yes, that's our now two years old Geraldo with me. Happy Birthday Geraldo! (2 April.)

I'd said, a wee while back, that my tremors were getting worse and they are. If it follows the usual pattern, then they'll get much worse and I could lose my ability to speak... again. It's a temporary thing but I still hate it really quite a lot. It's anyone's guess how long this spell will last. As a consequence, I won't be posting much but will try to visit your blogs as I'm able. Facebook is where I can be found right now, it's a way to keep in touch and it's just... easier. Easier is good. 

This is also an apology to those whose emails I haven't returned, etc . . . Emails aren't easy right now. Annnd, this post is getting too long, watch the video and mayhap you'll see why easy is better for me just now. Many thanks to the kidling for making this video.


44 comments:

  1. Heartfelt hugs.
    Always.
    And the usual oceans of caring.

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  2. I'm so sorry you have to go through that, life is harsh sometimes. I hope someday a cure can be found. Someday soon.
    Geraldo is a sweetie.

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    1. Thanks River... it's not all bad, there are fun moments which arise from it.

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  3. What tribulations - my thoughts are with you. I am sure that Geraldo must help a great deal!

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    1. He and the other three - I'm surprised they weren't throwing themselves in the middle of it! There's as much humour as anything in the situation, it's just challenging at times.

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  4. I hate Parkinson's Disease. My sweet mother had it for many years. The video was an extraordinary gift to all of us because it made both you and PD real. You have a great attitude, and (of course) attitude is everything when it comes to PD. Geraldo ... what a cutie he is.

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    1. Thank you Colette. It was also meant as an apology to those who may feel I'm neglecting/ignoring them.

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  5. I wish the world were perfect. Pat those dogs for me.

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    1. I'll even give them hugs. Wish I could take away your pain.

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  6. Do what's easiest for you and keep on keeping on!

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    1. If making ribs for dinner as well as another oven candle is keeping on... I'm keeping on! Just a bit more slowly.

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  7. Your video is really eye-opening for me. I am quite ignorant about the realities of tremors and hope you don't mind if I ask you a couple of questions. Does your tremor make it difficult to look at things or does your brain compensate for the shake? Do you experience motion-type sickness? Are things better or worse with your eyes closed? Is the tremor there while you sleep?
    I guess that is a few more than a couple of questions, but I am just trying to understand better what it is like for you.
    Wishing you the best - Wilma
    P.S. Geraldo is a cutie.

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    1. I wish more people would ask questions!

      1. At this point my brain mostly compensates although it can mess up my spatial judgement, which ups the risk of falls. As it gets worse my brain will no longer be able to compensate.

      2. I do experience motion-type sickness but it's as a result of a vehicular accident when young. When it gets to the head-slamming stage (where muscle spasms cause my head to slam into my shoulder) then it really exacerbates the motion sickness. Thank goodness for ginger and peppermint!

      3. Things are MUCH worse with my eyes closed, or when it's dark or shadowy/twilight. Much like a dancer, I use visual clues to maintain my balance... with no visual clues I will fall, if standing, or start slipping from my chair if I haven't braced myself.

      4. One of my movement disorders is called Periodic Limb Movement Disorder... which often accompanies Parkinson's. It's Restless Leg Syndrome's meaner cousin, often involving the whole body, and it has teeth, lol.

      I have arthritis and move a lot, soon it will be 24 hours a day, which means my pain levels are also increasing, so if I seem whiny... I am. It happens and then it passes.

      Thank you for asking and Geraldo is adorable, which is why he's still among the living! ;-)

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    2. I should have been more specific on #4, sorry. PLMD occurs whilst sleeping, so, yes, I move during sleep as well.

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  8. Thank you so much for sharing this. I have a dear friend with early stage Parkinson's and I appreciate knowing more about it and what she may face. You are brave to carry on as you do. Take good care.

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    1. Thank you Shawn, but do keep in mind that I also have a severe form of hereditary essential tremor (aka familial tremor) as well as PLMD and muscle spasms. I sincerely hope your friend doesn't have all that as well.

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  9. Hopefully it doesn't take long to reside once more. Life can sure stack on the crap.

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  10. Oh sweetie, I love you. Know that you're well loved. Take care of you, breath by breath.

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  11. While a picture can tell a thousand words, a video can tell even more. We can only hope the worst is over soon and you are on a better path.

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  12. I hope you get through this. It's no small challenge, but you seem like one tough warrior.

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  13. Thank you for the video and the answers to Wilma's questions. I wouldn't have thought of those questions but as soon as she did, I wondered too. You have a sweet voice, Jacqueline. If you lose it, I so hope it comes back quickly.

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    1. jenny_o, thank you. I hope my voice doesn't go, absolutely hate it when it does!

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  14. Hey Ms Cranky...don't worry about posting or comment on others blogs...just know that you are in our thoughts and hearts. Take care. Hugs. :)

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    1. Returning your hugs, with interest!

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  15. That must be very frustrating. I hope it passes quickly for you!

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  16. I don't know what to say, Jacquie...I wish there was something I could do to help you. I am glad you have the Kidling near. I hope this episode passes sooner than you even dare hope for.

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  17. Oh my gosh, I'm so sorry, you are so brave to live so gently with this affliction. Hugs and purrs to you.

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  18. Poopy butt! I was just getting to appreciate you. Now I appreciate you more so I'll have to find you on Facebook. It looks like Geraldo is good at his job so I can worry a little less, but we, your fans and friends are here for you. My dear departed mother, Jacqueline, would be rooting for you.

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    1. I'm on Facebook as Jacquelineand Mitchell. No, the and isn't a typo.

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  19. Little sweetheart in your hands. You look so lovely in the video! And I've sent a prayer up instantly, hoping your tremors settle soon. I hope you don't lose your voice, I surely do!

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  20. You two are cute together! May this spell pass soon and you get better.

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  21. Good morning! There's a "Music and Words Award" for you over at my blog today (April 7) for when you're feeling more up to it!

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  22. Thank you so much for sharing this video. My heart is with you always. Sending you huge hugs. Meanwhile, San Geraldo would have much preferred if your shaking right hand had been up against his belly the entire time. Thanks for the facebook address... FINALLY! Love, love, and more hugs.

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  23. It's brave of you to share this, and we love that your dog is just so happy to be sitting in your lap regardless of what's happening to you. Stay strong. We're always here, even if just for a little comic relief.

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  24. Blessings......
    You are quite courageous. I imagine it is not easy and the journey has many hills and valleys. May God cradle you, lift you up and carry you through.

    Stay blessed.
    peace.
    Rhapsody
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    “The highest education is that which does not merely give us information, but makes our life in harmony with all existence”-Rabindranath Tagore

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  25. I do hope you're on an upswing now. Not fun at all.

    You don't have to come and comment on my blog, but you might enjoy watching some videos on this post: http://www.anapeladay.com/2016/04/be-kid-for-just-little-bit-longer.html They are about trying to find that child within.

    Hang in there!

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C'mon, be cranky and let 'er rip!